My Book
by Martyn on Jan.22, 2012, under Other, Pernicious Anaemia Society, Personal
Many of you have been asking about the book that I have written that seeks to clarify just what B12 Deficiency is, what Pernicious Anaemia is and explores the consequences and impact of the disease on sufferers.
Well, it’s written and is now with the publisher being edited. It is due for publication in early April of this year and the title has been agreed as being:
Pernicious Anaemia – the forgotten disease. The Causes and Consequences of Vitamin B12 Deficiency.
Choosing the title was harder than writing the book as it had to include Vitamin B12 Deficiency. The book is written in plain English which, when you are describing complex biochemistry can be a challenge and it includes lots of case studies showing how shabbily we sufferers are being treated.
If you want any more information please don’t hesitate to ask on here.
Bye for now
M
February 1st, 2012 on 6:22 pm
Dear Martyn
I have PA I was diagnosed in 2002 after having an oesophagectomy. According to the Consultant The PA is not related to that. I also have under active thyroid. I have B12 injections every 4 weeks. I was made redundant in 2001 and have been on Incapacity benefit since then. I have never got back to ‘normal’ health. I am constantly tired. I have not got nerve damage but i have a lot of the other symptoms constantly. I had an Atos medical and they have said that I am capable of work, they did not say what in particular. I am appealing the decision. I moved house in 2006 and have a different GP now. I have just been to get a sick note as instructed by CAB the Dr told me that she did not think she could give me any supporting evidence as all my blood tested are ‘normal’. She said perhaps a little job might be nice.
A quality of life would be nice
I don’t really know where to go from here. The CAB told me that I will need supporting evidence. The Atos examiner did not give me credit for the fatigue and associated problems.
Do you have any suggestions please as to whom I can go to that can examine me and testify/suport me in my appeal?
Regards
Anne