I recently received an email from a GP who wanted to know if we knew of anyone who required weekly injections to live a more or less normal life. I replied that I had and that many of our members need much more frequent injections than the...
The Calcutta Call
We are getting more and more calls from GPs whose patients have asked them to talk to us (but please let us know if your doctor is going to call us so that we can be prepared) but yesterday we had our first international call – from a doctor in Calcutta. The problem...
GP Telephone Calls
Yesterday I took two telephone calls from two different GPs who wanted to discuss their patient's problems. I was expecting one of the calls as the member had telephoned last week to tell me about the problems she was having getting adequate treatment. During the...
Update on presentation to mental health professionals
Well that went well. In the end there were around twenty young trainee Psychiatrists along with experienced Consultants and a few other professionals. The talk lasted fifty minutes and I took ten minutes of questions. Five of the Consultants requested copies of the...
Swine Flu
I admit confusion! I received a reply from the Department of Health regarding Swine Flu and patients of Pernicious Anaemia. I had sought clarification as to whether or not patients with Pernicious Anaemia should be regarded as an 'At Risk' group. I had thought that,...
End of Term Bash
Yesterday afternoon I joined former colleagues from the college where I taught for an end of term get together - or more accurately an end of term drinking session! I hadn't seen any of them since I had my first infusion in April. Every one of them commented on how...











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