Lessons from The Covid-19 Pandemic The arrival of the Covid-19 virus in March 2020 brought with it new challenges for patients with Pernicious Anaemia and their families and friends. The most serious problem centred around patients accessing their treatment –...
From the very first day that we started our helpline I’ve been aware that there is a serious problem with the way in which patients with Pernicious Anaemia are treated. Very few patients are able to receive an individually tailored treatment regimen based on their own...
I first met Sheila in 2009. She was in her late twenties and was struggling to continue teaching in Further Education as she was still symptomatic. Sheila had travelled to south Wales from her home in the north of the Principality to receive an intravenous infusion of...
Two weeks ago I was contacted by a journalist from the BBC who herself had been contacted by one of our members regarding the old chestnut – frequency of injections. The member had been on monthly injections (just like patients were treated in the 1960’s) but had...
Word reaches me of movings afoot in London that are not unexpected. It seems that the Dept. of Health and other interested parties are engaging with pharmaceutical companies and ‘suggesting’ that they may want to investigate the possibility of developing a 1mg or 2mg...
Thanks to all who responded to my request for patients to participate in a research programme investigating why some patients need more frequent injections than others. Please be aware that due to Insurance requirements only members of the Pernicious Anaemia Society...
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