I took another sad call yesterday. A member of the society was diagnosed fifteen years ago and had negotiated with her GP who prescribed her a monthly injection. And then she moved house to another part of the country. Guess what? Her new GP has told her that she can...
Even though Christmas is just around the corner the number of telephone calls to the society’s office hasn’t diminished. And yesterday I took a call that was quite astonishing in that it highlights the problems that newly diagnosed patients face. It came from the...
It’s just over a year since I spoke with the Director of Guidelines at NICE. The telephone call was the result of an email to the Director asking that they might want to consider doing something positive about the problems with the Diagnosis and Treatment of...
Over the summer I have been fortunate to be asked to make a presentation to four newly formed Support Groups. This has seen me travel to Glasgow, Belfast, Southampton and Wolverhampton. As well as these new support groups I have also been asked to make...
I am aware that you haven’t heard from me for a while. But please don’t think I haven’t been busy over the summer months because it really has been a busy period and actually finding the time to just sit down and update you has not been easy. Anyway,...
So here I am again, on the train bound for London. The journey will take me via Gloucester because the Severn Tunnel is closed. This detour adds another hour to my journey. However I’m not moaning as I’ll get to see the magnificent Gloucester Cathedral...
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