I’ve been busy reading new Guidelines for the National Institute for Care and Health Excellence (NICE). I am a Registered Stakeholder of NICE as Chairman of the Pernicious Anaemia Society. And as a Registered Stakeholder I am often asked to...
Yesterday was a busy day. We usually get around 8-10 calls to our telephone helpline but yesterday we had only been open for two hours and already we had taken a dozen calls. And the reason for the increase in demand was a study that had been...
I have recently been involved with a case involving a two-year old, the son of one of our members. It’s an interesting case that highlights the problem of Pernicious Anaemia in young children. This isn’t the first case of infant or juvenile Pernicious Anaemia I have...
Last week was quite eventful in terms of offering telephone advice. There was the Consultant Psychiatrist who was extremely worried about his elderly mother who was experiencing all the classic symptoms of PA but whose serum B12 was just over the threshold used by...
And now, for some positive news. As you probably know, we have, in the Library Section of the website, a document titled ‘Update for Health Professionals’. This is available for download to members and can be printed out. It’s a summary, all referenced, of the new...
From the very first day that we started our helpline I’ve been aware that there is a serious problem with the way in which patients with Pernicious Anaemia are treated. Very few patients are able to receive an individually tailored treatment regimen based on their own...
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