~ The Chair’s Blog ~
I am despondent! After the flu jab incident (and an aching arm) and the meeting with the GPs I have a right to be. And then, here come to emails addressed to me that have reminded me that I need to keep going. Email #1 Dear Mr Hooper, Words cannot describe...
Yesterday I travelled 75 miles to represent one of our members of the society at a Tribunal. The member, one of our earliest members, suffers from the worst effects of Pernicious Anaemia, had been receiving Disability Living Allowance (DLA) and,...
I have recently been involved with a case involving a two-year old, the son of one of our members. It’s an interesting case that highlights the problem of Pernicious Anaemia in young children. This isn’t the first case of infant or juvenile Pernicious Anaemia I have...
Last week was quite eventful in terms of offering telephone advice. There was the Consultant Psychiatrist who was extremely worried about his elderly mother who was experiencing all the classic symptoms of PA but whose serum B12 was just over the threshold used by...
And now, for some positive news. As you probably know, we have, in the Library Section of the website, a document titled ‘Update for Health Professionals’. This is available for download to members and can be printed out. It’s a summary, all referenced, of the new...
From the very first day that we started our helpline I’ve been aware that there is a serious problem with the way in which patients with Pernicious Anaemia are treated. Very few patients are able to receive an individually tailored treatment regimen based on their own...
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