~ The Chair’s Blog ~
I’ve been busy reading new Guidelines for the National Institute for Care and Health Excellence (NICE). I am a Registered Stakeholder of NICE as Chairman of the Pernicious Anaemia Society. And as a Registered Stakeholder I am often asked to...
Now a number of people have been concerned that I haven’t been posting for a while. Some imagine I’ve been on holiday, others that I’ve had nothing to report – well the truth is that I’ve been tied up with a major media campaign. One of our members had contacted her...
Two weeks ago I was contacted by a journalist from the BBC who herself had been contacted by one of our members regarding the old chestnut – frequency of injections. The member had been on monthly injections (just like patients were treated in the 1960’s) but had...
Last week I had an extremely interesting meeting with one of our members who is a Pharmacist and has offered to help us in any way that she can. She has been digging around and has found that when Hydroxocobalamin was first licensed for use in the UK the dosing...
I know, I know - I broke my promise to post everyday on here. And there's a reason. For the first time in years we had no telephone calls on Wednesday or Thursday. I cannot remember that happening before and it must be something to do with somebody's law. Today I...
I've just received news that my petition to the Welsh Government's Petitions Committee will be considering my petition in light of the Minister for Health's response to their request for his views on patient's receiving more frequent injections should they need them. ...
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