~ The Chair’s Blog ~
Thanks to all who responded to my request for patients to participate in a research programme investigating why some patients need more frequent injections than others. Please be aware that due to Insurance requirements only members of the Pernicious Anaemia Society...
I've just taken a call on my mobile from a member of the society who has been diagnosed as having Pernicious Anaemia. The diagnosis was, as is often the case, a long time coming but eventually her GP was able to tell her why she felt so awful. The patient came to...
Last week I had an extremely interesting meeting with one of our members who is a Pharmacist and has offered to help us in any way that she can. She has been digging around and has found that when Hydroxocobalamin was first licensed for use in the UK the dosing...
Yesterday I took two telephone calls from two different GPs who wanted to discuss their patient's problems. I was expecting one of the calls as the member had telephoned last week to tell me about the problems she was having getting adequate treatment. During the...
Just a quick note to say that all of those who have registered to take part in the research looking into why some patients need more frequent treatment than others will be receiving another questionnaire soon. This is because we have had to make a few slight...
The member left a message on the telephone answering machine asking that I phone her first thing on Monday which I did. "The Medical Director of the Trust called me on Friday afternoon saying that he had received your letter. He told me that he had written an...
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