Recent Guidelines

Recent Guidelines

I’ve been busy reading new Guidelines for the National Institute for Care and Health Excellence (NICE). I am a Registered Stakeholder of NICE as Chairman of the Pernicious Anaemia Society. And as a Registered Stakeholder I am often asked to...

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“He’s worried sick”

“He’s worried sick”

From the very first day that we started our helpline I’ve been aware that there is a serious problem with the way in which patients with Pernicious Anaemia are treated. Very few patients are able to receive an individually tailored treatment regimen based on their own...

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Is she cured?

Is she cured?

I first met Sheila in 2009. She was in her late twenties and was struggling to continue teaching in Further Education as she was still symptomatic. Sheila had travelled to south Wales from her home in the north of the Principality to receive an intravenous infusion of...

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Update on NET’s Research

Update on NET’s Research

So – we patients with full-blown Autoimmune Pernicious Anaemia stand a slightly higher chance of developing gastric cancer than the rest of the population. Doctors are not generally concerned about this as the risk is relatively low (I deal with this in my latest...

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Dementia Sufferer & B12

Dementia Sufferer & B12

I often think that I'm becoming 'case hardened' when dealing with telephone calls to the Pernicious Anaemia Society's offices.  'Case Hardened' is a term usually associated with the legal profession, specifically judges who, because they hear so many cases associated...

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