Last week I was at a NICE consultation which was looking at the problems with the diagnosis of Myalgic Encephalopathy (or encephalomyelitis). Because there are so many contentious issues concerning the disease NICE are going to take a good look at the subject and...
Yesterday I travelled 75 miles to represent one of our members of the society at a Tribunal. The member, one of our earliest members, suffers from the worst effects of Pernicious Anaemia, had been receiving Disability Living Allowance (DLA) and,...
I couldn’t put it off any more, and so this morning I started work on my presentation at the International B12 Conference that takes place at the University of Aarhus in Denmark next month. I have been asked to give a 20-minute presentation on how the problems with...
About this time of year, I take the time to reflect on what the society has achieved in the past twelve months. I’ve been writing these reviews for around 10 years now and there are always several significant developments that have taken place that has helped us to...
I suppose it started in February of 2016 when I received a telephone call from a lady who told me she was calling from The Cabinet Office. “Would you like to go to a Garden Party in Buckingham Palace?” she asked. “Of course” I replied “Somebody would like to meet you”...
It began as an idea in March of this year when I visited a local support group. One of the members, Dilys, volunteered to help organise a conference where members would be informed of the latest developments in the research programmes the society is collaborating...
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