Over the years I've heard some quite ridiculous reasons why patients with Pernicious Anaemia have had their treatment stopped, and the most common reason occurs when the patient complains of a return of his or her symptoms and the doctor will test the patient's blood...
I’m quite good at answering people’s questions when they telephone the Pernicious Society’s Office, after all I do have eleven years’ experience in dealing with members’ problems with getting a diagnosis and adequate treatment. But I took a call last week which not...
I took another sad call yesterday. A member of the society was diagnosed fifteen years ago and had negotiated with her GP who prescribed her a monthly injection. And then she moved house to another part of the country. Guess what? Her new GP has told her that she can...
Even though Christmas is just around the corner the number of telephone calls to the society’s office hasn’t diminished. And yesterday I took a call that was quite astonishing in that it highlights the problems that newly diagnosed patients face. It came from the...
Over the summer I have been fortunate to be asked to make a presentation to four newly formed Support Groups. This has seen me travel to Glasgow, Belfast, Southampton and Wolverhampton. As well as these new support groups I have also been asked to make...
I had a nice email last week; but only after a quite traumatic meeting I had had a few days earlier. The meeting was with a new Gold Member who lives in south Wales. She had telephoned after becoming a member and I invited her to the office. I’m getting quite used to...
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