What Can the Mother Do?

What Can the Mother Do?

I’m quite good at answering people’s questions when they telephone the Pernicious Society’s Office, after all I do have eleven years’ experience in dealing with members’ problems with getting a diagnosis and adequate treatment. But I took a call last week which not...

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Her Christmas is Ruined

Her Christmas is Ruined

I took another sad call yesterday. A member of the society was diagnosed fifteen years ago and had negotiated with her GP who prescribed her a monthly injection. And then she moved house to another part of the country. Guess what? Her new GP has told her that she can...

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The Annual Event

The Annual Event

I had a nice email last week; but only after a quite traumatic meeting I had had a few days earlier. The meeting was with a new Gold Member who lives in south Wales. She had telephoned after becoming a member and I invited her to the office. I’m getting quite used to...

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