‘The New Cobalamin and Folate Guidelines – the Patients’ Perspective

by | May 1, 2015 | 0 comments

My next book about Pernicious Anaemia is due to be published in November.  It brings together two papers published last year; the first of these was the results of the survey of members that was published in April of last year and details how members of the society were diagnosed or not diagnosed – 14% waited over ten years to be told the correct reason for their symptoms etc.  The second important paper was the new Guidelines on Cobalamin and Folate published by the British Committee for Standards in Haematology (BCSH) in June of last year.  For my book I had to carefully analyse these guidelines and they really are a remarkable admission that the way in which B12 Deficiency in general and Pernicious Anaemia in particular is diagnosed is nothing short of a mess.  What I have done is to show how those shortfalls in the diagnostic procedure is impacting on patients; it’s the human face of what the guidelines identify as problems.

When I made a presentation to the conference of Podiatrists in Leicester last year I was asked by several of the delegates if I would make a similar presentation to their regional groups.  I have made eight such presentations all over the UK, from Southampton in the south to Huddersfield in the north and I have another three meetings lined up stretching into November.  Podiatrists are continually being told to look out for peripheral neuropathy as an indicator of diabetes.  And the vast majority of my audiences have never thought of any neuropathy being associated with Pernicious Anaemia – so I’m doing my bit to raise awareness which is all that I can do.images

Later this month I am giving a presentation to around 40 Post Graduate Doctors and my talk will centre on my next book (out in November just in case you wondered) and so will deal with how the failings in the current diagnostic procedure is impacting on patients.  I have taken excerpts from the Guidelines and linked them with statistics from our survey – clever eh!  The result is an exposition of how the failings in the current test is affecting patients.

I don’t want things to end there.  I want to make greater use of the presentation and so am offering myself as being available to deliver the presentation to whoever is interested, doctors, other health professionals and anyone with an interest in this.  If you are able to identify a group of people who you think might be interested in what I have to say please ask them to get in touch with me.  I have already been in contact with the officials at the Dept of Health who are extremely interested and are working with us at the society to promote my presentation.

Please note there may be a small charge involved for non-medical professionals to cover travel expenses.

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