Yesterday I travelled 75 miles to represent one of our members of the society at a Tribunal. The member, one of our earliest members, suffers from the worst effects of Pernicious Anaemia, had been receiving Disability Living Allowance (DLA) and,...
Handheld Hb Monitor & south Wales Support Group Meeting
It began with a telephone call on Wednesday. A manufacturing company that makes medical devices told me of a new handheld device that could be used to..
New St Louis Support Group
Well, well: two United States based Support Groups in one week! There's another support group now for St Louis/Missouri. Members will find the contact details for the Missouri Support Group and all other Support Groups on our Community page. If there is no Support...
Another Success Story
I've just taken a call on my mobile from a member of the society who has been diagnosed as having Pernicious Anaemia. The diagnosis was, as is often the case, a long time coming but eventually her GP was able to tell her why she felt so awful. The patient came to...
Update on ‘The Complaint’
The member left a message on the telephone answering machine asking that I phone her first thing on Monday which I did. "The Medical Director of the Trust called me on Friday afternoon saying that he had received your letter. He told me that he had written an...
A Life Saved
Yesterday was a quite traumatic day. We usually receive two, maybe three calls per day from distraught members who telephone the office seeking reassurance that they are not going mad and that it is normal to want more frequent injections. One lady who joined last...
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