Now that the new website is up and running and in safe hands it is time to turn our attention to our Awareness Week that will take place in October of this year.
Yesterday we applied for a grant to have a series of posters professionally designed and printed and I have written to several MP’s who are sympathetic to our cause asking them to arrange a series of events in the Palace of Westminster. These events will include the following:
Parliamentary Reception – the last one we held was six years ago and was not successful as we had statistical evidence about how poor the current diagnosis and treatment of PA is – this time we will be able to make a presentation.
Prime Minister’s Questions
Early Day Motion
Adjournment Debate
Questions to the Secretary of State for Health
Hopefully, really hopefully a Westminster Hall Debate.
We will be asking all of our members to write to their MP requesting that he or she attends the reception, signs any Early Day Motion, takes part in any debates and is made aware of the problems that we face in getting an accurate and timely diagnosis with treatment based on the individual’s needs. Already there is a link on the website so that members can quickly find out who their MP is and how to contact them. We will be providing a downloadable pro-forma letter that will make the whole campaign as easy as possible.
Between now and October me and the other volunteers will be busy making all of the necessary arrangements.
More on this as it happens.
Hi Martyn I missed your lecture on vitamin b12
Deficiency at foothealth 2014 due to a death in
The family .. Was wondering if you could give a lecture
On Sunday 7 sept 1.30 till 3 here in leicester..
I am a chiropodist / podiatrist HCPC reg.. And also vice chair of the
British chiropody and podiatry assoc. East mids branch
And for my troubles also responsible for continued
CPD .. Checked ur lecture notes on PEM website
And looks very interesting and also have a few patients
With b12 deficiency .. We give a good fee for expenses
Etc .. Please reply ASAP and if you can’t make this date maybe
A date in the future as we have quarterley meetings !!
Thx darren
I have been researching Pernicious anemia for years now and I am so glad to have come across this site. I never thought I would find someone who would understand and I think that you need to have it to understand it. It is a vile illness and I am fed up feeling so awful around 6wks before my injection is due. I also think that people around me think I am exaggerating when I say how bad I feel so I don’t bother saying anything now, but God I feel crap! I am 53yrs old and it has been around 12yrs now. I was also taken off the injection for 2yrs because of blood results and what a dreadful 2yrs that was! I will join the society once I am in employment as I can’t affod to at the moment. Look forward to hearing from you.
Shirley McDonald