I’ll be in London (again) on Tuesday for a meeting with a group of peers regarding undiagnosed Pernicious Anaemia masquerading as Chronic Fatigue Syndrome/ME
Many of the members of the Pernicious Anaemia Society were originally told that they had CFS/ME because their tests results came back showing no B12 Deficiency and No Intrinsic Factor Antibodies. The new guidelines state quite categorically that the current serum B12 test should be ignored if the patient has all or some of the symptoms of Pernicious Anaemia and the patient should be treated using replacement therapy injections of B12. Likewise, just because a patient’s blood work didn’t show any intrinsic factor antibodies doesn’t mean that he or she doesn’t have Pernicious Anaemia rather the patient could have negative antibody pernicious anaemia – NABPA.
We know that very few GPs have read the new guidelines so just how many people whose blood tests indicated nothing wrong were then told that their symptoms were due to CFS/ME? Probably many thousands and that is what I will be talking about on Tuesday.
Following that meeting I will be meeting with the Treasurer of the Society to discuss future funding options in the usual haunt in Paddington Station.
I’ll try to update you on the outcome of the meeting soon.