A Step in the Right Direction - Update on Pilot Scheme Last week I travelled to north Wales for a meeting with one of the doctors and practice nurses of the health centre that is hoping to introduce a pilot programme that will see patients with Pernicious Anaemia...
Warning – this post may upset you (I know it did me). Here we are, in the middle of a campaign to get the way in which Pernicious Anaemia is treated reviewed. We are getting somewhere, though progress is slow. Thankfully we now have two research teams looking at the...
Let's get one thing straight; I love women and I always have. Now, why am I telling you this? Well, when I was studying for my A-levels I had the opportunity to take extra classes in either French or Typewriting. And, because the typewriting class was full of females...
I've been asked to thank all those who volunteered to take part in Prof Hunter's Research Programme that is investigating why some patients need more frequent treatment than others. We appealed for members who manage perfectly well on the 3-month regime in the UK. We...
Two weeks ago I was contacted by a journalist from the BBC who herself had been contacted by one of our members regarding the old chestnut – frequency of injections. The member had been on monthly injections (just like patients were treated in the 1960’s) but had...
Word reaches me of movings afoot in London that are not unexpected. It seems that the Dept. of Health and other interested parties are engaging with pharmaceutical companies and ‘suggesting’ that they may want to investigate the possibility of developing a 1mg or 2mg...
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