From the very first day that we started our helpline I’ve been aware that there is a serious problem with the way in which patients with Pernicious Anaemia are treated. Very few patients are able to receive an individually tailored treatment regimen based on their own...
We ensure that the office is manned every Saturday morning so that people who are at work during the week, and are unable to use the telephone at work are able to contact us at the weekend. And last weekend a lady who lives in south Wales asked if she could come in to...
Off we go to the Isle of Wight where a new member lives. She telephoned the helpline that I was manning on Monday. She had been diagnosed three weeks ago as having Pernicious Anaemia and was prescribed 1mg tablets of Cyanocobalamin and told to take one tablet every...
There’s some strange things happening in Norfolk and I’m more than a little concerned about what’s going on. A phone call to the office yesterday (one of 14 we took) made me aware of some dark arts being practiced in a rural community health centre. The lady who...
“I had a nervous breakdown over Christmas”. The callers voice was shaky, trembling almost. “I’ve phoned you before, you helped me cope, but I’m really bad now, I don’t know how I’m going to carry on”. It was last Friday that I took that call. I couldn’t remember...
I first met Sheila in 2009. She was in her late twenties and was struggling to continue teaching in Further Education as she was still symptomatic. Sheila had travelled to south Wales from her home in the north of the Principality to receive an intravenous infusion of...
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