storyWe are now dealing with an increase in requests from journalists who want to hear your story.  As a Patient Support Group it is our duty to raise awareness of the issues faced by our members.  These issues include the problems of an accurate and timely diagnosis, adequate treatment and on-going problems after diagnosis.  Consequently we are looking for people to share their stories with the media to raise awareness of these problems. This which would involve using your name/maiden name and a head shot of yourself which would go into a national paper or be used in a women’s/men’s magazine.

If you are happy to support and help us and share your story please contact Mars who will chat through what is needed she can be contacted at marswebbpr@aol.com or via her mobile on 07717718063. Thank you for your support.

Two such stories are about to be published in national magazines next month.  I will let you know when and where these will be published once they are available on newsstands.

 

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Comments

4 Comments

4 Comments

  1. Linda Thomas

    Good morning. I live in in the United States but found your blog through the internet and I have purchased your books. I was diagnosed with pernicious anemia on February 22, 2016 and would love to share my story however not sure if it matters that I live in the US.

    Reply
    • Martyn

      You never know Linda – send Mars an email.

      Reply
      • Linda Thomas

        Hello Martyn, this is Linda Thomas (again, from the USA) I received a call from my cardiologist on Friday that my cholesterol numbers are extremely HIGH (at a dangerous level I was told) My non hdl is 251, my CHOL/HDLC ratio is 5.5, my LDL is 215, Triglycerides are 179 and total cholesterol is 307. Your book mentions this is related to pernicious anemia. I am scheduled for colonoscopy and EGD on Wednesday, is the procedure safe while my numbers are so high? how much “at risk” am I. I do not eat a unhealthy diet, nothing deep fried, non-smoker, no fast food etc. My B12 was 188 eight weeks ago, I’ve had 8 injections. B12 is now 1089. My homocysteine was 23.4 on January 18, 2016 however not checked again, should it be?

      • Martyn

        I’m sorry but I can’t advise you. I am not a doctor.

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