Two weeks ago I was contacted by a journalist from the BBC who herself had been contacted by one of our members regarding the old chestnut – frequency of injections. The member had been on monthly injections (just like patients were treated in the 1960’s) but had...
Last year I met with the editor of the British National Formulary (BNF) to discuss the problems that a great many of our members have in receiving adequate replacement therapy injection based on their individual needs. The meeting was successful and I was told that...
Do you want to know what is the most irritating and annoying thing about running the Pernicious Anaemia Society? You may think it's the continual stream of telephone calls relating to the time taken for an accurate diagnosis. Or it could be the constant calls about...
Yesterday I received a letter from the work colleagues of a member who has passed away. She worked for a large Mental Health Facility in Wales and lived just outside Bridgend. I don't know if I ever met her or if I had spoken to her on the telephone. But she was...
"Here's some good news". That's how the email started. It was from a GP who had just completed the first of what will transpire to be a series of presentations to fellow doctors that raises awareness of the prevalence of Vitamin B12 Deficiency along with the...
I know, I know - I broke my promise to post everyday on here. And there's a reason. For the first time in years we had no telephone calls on Wednesday or Thursday. I cannot remember that happening before and it must be something to do with somebody's law. Today I...
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